I’ve always been drawn to the mysticism of a David & Goliath battle and turning the odds on their head. Perhaps it goes back to when I was wee bairn fighting chronic asthma or maybe it’s a reflection of later life and my on-going battle with MS. Either way I’m always drawn to fighting for the oppressed […]
So we did our first job last night as the newly formed Your Event Stream. I managed to strike up a rapport with this guy who organises fashion shows. He invited us to film his latest event in a swish club in Mayfair frequented by A list celebrities. To say the whole evening was a […]
So it’s the eve of the big push. On Monday, I go into Charing X hospital for a heavy dose of chemotherapy and the start of a 9 month course of treatment. Hopefully it will help to stop the current lesion, gnawing away in my brain, allowing me to regain lost ground. It’s not without its pitfalls. […]
Apart from the first 6 months after diagnosis I tended to stay clear from the MS or Disabled community for many years.The initial period was a dark time, lying in bed with my thoughts about death, disability and how I could be a good dad to my son Connor. No doubt I probably barked on about the shit […]
Listening to Anne Wafula distressing story about wetting herself on a train – the disabled toilet was out of order; had a lot of empathy with me. Having lived with Multiple Sclerosis for over 20 years and now reliant on a wheelchair, I’ve had my own share of wet underpants and the subtle woft of urine […]
I’ve always had a bug bear about big pharma charging astronomical prices for medicines. Too many sufferers of various ailments are refused treatments or drugs, because they are either deemed too expensive by NICE (National institute of Clinical Excellence), or they end up in a post code lottery, reliant on their local NHS trusts to […]
Well it will be 20 years next July since I was diagnosed with the motherfucker I like to refer to as MS. I mentioned in one of my previous posts that I’d had my first MRI scan since diagnosis recently and I’d been called in to see my Neurologist to go through the results. The good […]
I often sit at my kitchen table, after a another night of painful spasms, broken sleep and the effects of an enveloping fog, clouding my senses. Multiple Sclerosis has an excellent ability to knock you down, especially the progressive forms. These exhausting night time skirmishes in my battle against the disease take no prisoners. But like […]
Although I have thrown myself into the breach in the past such as hand cycling from Edinburgh to London in 2007 leading the MS-nifcent 7 to Downing Street and then working as a form filler and fundraiser for a local disabled charity in Fulham, the last 2 weekends have been a real eye opener for […]
I’ve always been a bit of a closet train spotter. Growing up in Ealing, I was always dragging one of my siblings down to the Broadway to watch the Express trains thundering through on their respective journeys. Maybe it was the sizzle of the tracks as the train approached or the explosion of colour as […]
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