Blog
EVERYONE HAS A VOICE – NEVER LET IT BE SILENCED.
Life is like a jigsaw puzzle in many ways. It can be confusing, often difficult, leaving you living on the edge, questioning why you’re here or what you’re doing. If anything, it only makes sense when you finish it and the whole map is set out before you.
I’ve been trying to work out mine for a few years now. It’s been an eclectic mix of disasters, people, triumphs and events, helping mould me into the person I am. It’s something I would never wish to change.
For me writing about my experiences and helping raise awareness of disability, is my way of filling in the pieces, it’s cathartic if you like.
Nothing is impossible in life, if you know what is before you, and you know yourself. Just keep the faith and you will be surprised where it takes you.
Feeling Blue
My Dad & Mum passed this weekend 16 & 13 years respectively. He was always my inspiration teaching me to hold the line and never give in but it was my mum who gave me my soul. She missed him once he left, often saying to me she was ‘feeling blue’ without him. When she […]
The ‘Touching Cloth’ defence.
I’ve always been drawn to the mysticism of a David & Goliath battle and turning the odds on their head. Perhaps it goes back to when I was wee bairn fighting chronic asthma or maybe it’s a reflection of later life and my on-going battle with MS. Either way I’m always drawn to fighting for the oppressed […]
It was like the blind leading the blind
So we did our first job last night as the newly formed Your Event Stream. I managed to strike up a rapport with this guy who organises fashion shows. He invited us to film his latest event in a swish club in Mayfair frequented by A list celebrities. To say the whole evening was a […]
We are not afraid: We shall overcome some day.
So it’s the eve of the big push. On Monday, I go into Charing X hospital for a heavy dose of chemotherapy and the start of a 9 month course of treatment. Hopefully it will help to stop the current lesion, gnawing away in my brain, allowing me to regain lost ground. It’s not without its pitfalls. […]
The kernels orders brought me home
Apart from the first 6 months after diagnosis I tended to stay clear from the MS or Disabled community for many years.The initial period was a dark time, lying in bed with my thoughts about death, disability and how I could be a good dad to my son Connor. No doubt I probably barked on about the shit […]
Broken disabled toilets; sadly they are just the tip of the iceberg.
Listening to Anne Wafula distressing story about wetting herself on a train – the disabled toilet was out of order; had a lot of empathy with me. Having lived with Multiple Sclerosis for over 20 years and now reliant on a wheelchair, I’ve had my own share of wet underpants and the subtle woft of urine […]
GW Pharma are just mugging people with Multiple Sclerosis
I’ve always had a bug bear about big pharma charging astronomical prices for medicines. Too many sufferers of various ailments are refused treatments or drugs, because they are either deemed too expensive by NICE (National institute of Clinical Excellence), or they end up in a post code lottery, reliant on their local NHS trusts to […]
Life’s a gamble..
Well it will be 20 years next July since I was diagnosed with the motherfucker I like to refer to as MS. I mentioned in one of my previous posts that I’d had my first MRI scan since diagnosis recently and I’d been called in to see my Neurologist to go through the results. The good […]
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